Bienvenid@s a My own Arcadia

Me pareció una buena idea asociar el mito de la Arcadia a este blog dedicado a la enfermedad de Parkinson para reivindicar el optimismo necesario para que podamos seguir disfrutando al máximo de nuestra propia vida dentro de las posibilidades de cada un@ y en cada momento.

Nuestra propia Arcadia (My onw Arcadia) la tenemos que construir dentro y alrededor de nosotros mismos con aquellos que amamos y que nos aman.

lunes, 4 de octubre de 2010

Here is the speech Bryn Williams delivered at the World Parkinson Congress Opening Ceremony.

Thank you Dr Lees for that kind introduction.

Good evening Ladies and Gentlemen. 

I am truly honored
to have been given the opportunity
to address this
the Second World Parkinson Congress.

As you know
the patient address at the First Congress
was delivered by Michael J Fox.

I have been a fan of Michael's since I was a teenager. 

One of my first trips to the cinema
was with my sister Christine
to see
"Back to the Future" .

I thought it was a fantastic film.

As we left the cinema
I said two things to Christine.

The first
I have no problem with.

I said:
"Michael J Fox is so cool.”

The second statement
I am now not so sure about.

I said: 
“I wish I was just like him".

Four years on from the first Congress
I am delighted
to welcome you to Scotland.
Many of you are new to Glasgow
and I am sure you will enjoy your stay in this wonderful city.
Glasgow is known throughout the world
as a city of culture,
as a city of invention and industry,
as you will discover
a city inhabited by colorful,
and optimistic characters.
For me
Glasgow is a great place to have Parkinson's. 

It is also the ideal place
for our community of carers, clinicians, patients and researchers, 
to come together
and plot the demise
of this
horrific disease.

As a patient,
I extend a particularly warm welcome
to the clinicians and researchers.

In the past four years
you have been responsible
for the improved understanding of Parkinson's,
for the developments in methods of treatment,
and for the identification of compounds
with the potential
to eradicate this unforgiving condition.

One day,
you will cut the key
that will unlock our bodies.

On behalf of the patients and carers
I thank you wholeheartedly for your work.

All of us arrive at this Congress
with a common goal.

To improve the lives of people with Parkinson's disease.

Everybody in this room has something to contribute.
The clinicians and researchers
bring extraordinary science
and potential therapies
to be discussed and dissected.

But this
Is not just a science meeting.

is a Congress.

is a gathering
of the whole Parkinson's community
and the patients and carers
bring an extraordinary contribution too.

We bring the experience,
we bring the knowledge,
the passion
that comes
from living with this disease.

The value of this experience, knowledge and passion should not be underestimated.
The patients and carers bring something else to this Congress.
that only a person
who lives with this disease
day in
day out
can truly understand.


What Martin Luther King referred to
as the fierce
of now.

I’ve only been diagnosed
a few short years
and already
I have had enough.

My wife
and my two little girls
have had enough.

My friends
who have been walking miles,
running miles,
and swimming miles
to raise awareness
have seriously had enough.

Their aching limbs
and cramped feet
long for a cure almost as much as mine do.

A cure that’s been sitting tantalizingly
below the horizon since before I was diagnosed.

A sunrise waiting to happen.

Every day
I ask myself what can I do?

As a group of patients and carers
what can we do?

What can we offer
to advance the work
of you,
the clinicians and researchers?

We can offer you commitment,
we can offer you cooperation
and we can offer you collaboration.

Clinicians and researchers
we can be your Advocates.

As Advocates we can dispel the myths
of Parkinson's.
The outside world believes this is a disease of elderly. 
We know it isn't.

The outside world believes there are drugs
that will see you serenely
through your life. 
We know there aren't.

The outside world believes the cure
is five years away. 
We know people who were told that 30 years ago.

As Advocates
we can mobilize ourselves
to deliver volunteers
for clinical trials
more quickly.

As Advocates
we can become positive nuisances;
pestering politicians,
badgering budget holders
and nagging decision-makers.

As Advocates
we can express ourselves
and the concerns of our community
in a way which will deliver results.
As a community of Parkinson's Advocates
we can be a resource for you
the clinicians & researchers.

But to be effective
we need your commitment,
we need your cooperation
And we need your collaboration.
We need your support
and your encouragement
to bring the value
of our experience
and passion to bear.

We need your guidance
to plan our journey,
to point us in the right direction,
and to propel us to the destination
all of us here
want to reach.

A partnership of equals.

This Congress
is not just for the scientists to demonstrate
what they hope to do for the patients,
it is also an opportunity
for us
the patients
to demonstrate what we can do to eradicate Parkinson's.

If the delegates whose life’s work is Parkinson's,
collaborate with those who live with Parkinson's,
together we can deliver a future without Parkinson's.

But the road must start here.

The opportunity exists this week. 
In this city. 
At this

Urgency. Ladies and gentlemen,
The fierce urgency of now.
Now is the time to realize the promises of science.

Now is the time to bring our urgency to bear
and deliver a future of hope for the victims of this disease.

Now is the time
for a steady hand,
a strong voice
and a keen sense of smell
for the opportunities that await us.

A steady hand.

A strong voice.

A keen sense of smell.

I had them once.

I want them back.

Welcome to Scotland.
Welcome to Glasgow.
to the World Parkinson Congress.

Thank you very much.

3 comentarios:

my own arcadia dijo...

Thanks Bryn for your inspiring speech. It was a pleasure to meet you at the congress.

Paco Montesinos dijo...

Thanks a lot Bryn for your hopeful

my own arcadia dijo...

Final del discurso.
Comparto al 100%.

Ahora es el momento
de una mano firme,
una voz fuerte
y un agudo sentido del olfato
por las oportunidades que nos esperan.

Una mano firme.

Una voz fuerte.

Un agudo sentido del olfato.

Yo los solía tener.
Quiero volver a tenerlos.

Unidos contra el Parkinson

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